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Noticeboard - A new website to support people living with
HIV
New DIPex Website Supporting People Living With HIV
A new website to support people
living with HIV has just been launched. The website (www.dipex.org/hiv)
allows people to watch video clips and listen to real patients
as they talk about their experience of living with HIV.
It has been developed by City University London, working with
the DIPEx charity; Homerton University Hospital; the Centre for
Sexual Health and HIV Research at UCL; Camden PCT; Oxford
University and a number of community organisations.
To create the HIV website researchers at City University
interviewed 50 people living with HIV from around the UK. The
sample reflects the diversity of the HIV patient population in
the UK and includes gay men as well as people from African
communities.
Dr Damien Ridge, an experienced qualitative researcher conducted
the interviews which explored the participants’ experience of
HIV infection including their diagnosis, use of services,
disclosure of their HIV status, stigma and discrimination
Their accounts are freely available as video and audio “clips”
24-hours a day on the new HIV website (www.dipex.org/hiv). These
are supported by explanatory text, answers to frequently asked
questions (FAQ), as well as signposts to support groups and
other resources.
Professor Jonathan Elford, of City University, who led the
research said: “HIV remains a highly stigmatised illness despite
treatment advances. In 2005, there were over 7000 new diagnoses
of HIV in the UK. Not surprisingly people with HIV often feel
anxious and can be afraid of asking professionals and support
groups for help".
“Being able to hear the stories of other people with HIV on the
Internet can give hope, a sense of not being alone, and provide
helpful advice. These first hand accounts will also give
relatives, friends and health care professionals – as well as
the wider public – a better understanding of what people with
HIV go through.”
City University’s St Bartholomew School of Nursing & Midwifery
funded the study with additional support from the Department of
Health, Gaydar and the Terrence Higgins Trust.
To develop the website the researchers worked with the following
community groups and organisations: African HIV Research Forum,
African HIV Policy Network, Black Health Agency Manchester,
George House Trust Manchester, UK Coalition of People Living
with HIV & AIDS, Terrence Higgins Trust, London Lesbian and Gay
Switchboard, Manchester Lesbian and Gay Foundation, Action on
Gay Men's Health, Gaydar and Gay.com.
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